Tongue Tied – An Update

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A little under a month ago I wrote about C having her posterior tongue tie released in the hope of improving her feeding and slow weight gain. And I figure it’s about time I gave an update!

Week 1 post snip was disappointing – zero weight gain despite lots and lots of angsty feeding from C. She had managed to pick up another cold so was snotty and sniffly, and we just had to hope that was the cause of no weight gain.

A week later and we were proved right with a chunky 4.5ozs weight gain – her best weekly weight gain since birth. And just to prove it wasn’t a fluke she’s gone on to put on increasing amounts of weight in the next two consecutive weeks, making it a total 19.5ozs weight gain over 3 weeks.

I’m loathe to bring up those cursed centile charts (imagine how we’d feel if they started giving average weight charts for adults based solely on age?!), but this weight gain means she’s been following a lovely curve on the chart, sitting neatly on the 50th centile.

Some will read that last sentence and think ’50th centile? What was she worried about?’, but given C was off the top of the chart at birth, that was still a pretty hefty drop for her. I’m grateful however that I didn’t have to worry about her dropping off the bottom of the chart, as many others do.

Beyond her weight gain, I can see that C has much improved mobility in her tongue, and for the first time recently I’ve started to see her reaching her tongue forward as she latches on – a really good sign that her feeding technique has improved. She’s also started to learn to roll from her front to her back, and started grabbing for toys on her play gym. So it’s been a pretty busy few weeks for her development wise.

I’d love to say she’s now a perfect feeder, but we still have plenty of angsty, screamy feeds, and she still manages to sick up most days (mostly aiming at her daddy it seems). But as long as I remember to stick to my dairy free diet it’s minimal and certainly nothing to worry about.

Given C’s tongue tie was quite minor and a number of health professionals told me it wouldn’t be affecting her feeding I’m astounded at the difference it’s made, and am really pleased we went ahead.

I’m also, however, astounded at the number of people I’ve met on this journey who have had delays in the diagnosis and/or treatment of their baby’s tongue tie, with some being forced to wait months for an NHS referral to come through, for what is a quick and simple procedure. Within that number are several who’ve felt bullied into giving formula top ups or giving up breastfeeding altogether as a result of delays to tongue tie diagnosis or treatment.

If anyone reading this is in that position then my advice would be to find an IBCLC certified lactation consultant who can advise on tongue tie and whether it is affecting feeding, then stand your ground, read all the evidence and push for the support and treatment you need.

And if you have access to private medical insurance eg through your or your partner’s work then do add baby to it as soon as possible – if I was facing a £250 bill for releasing C’s tongue tie I’m pretty sure I’d have had second thoughts and would probably still be stressing about weight gain.

Last but not least, NCT are campaigning for better identification and treatment of tongue tie and on their website have a template letter to send to your MP.

I’ve sent mine off today. Whether or not you’ve been affected by tongue tie as well, I’d urge you to do the same.

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8 thoughts on “Tongue Tied – An Update

  1. Great to read that your scrumptious C is doing better since her tongue-tie snip! My C also had a tongue-tie which was discovered when she was 2 weeks old despite me specifically asking the paed who did her post-natal checks and him saying no – grr! Thankfully we have a great NHS infant feeding clinic at our local children’s hospital and we were referred there for division when she was 3.5 wks. It took a long time for her latch to really improve as she’d learned such a bad technique to begin with, but we got there in the end! I totally agree that it should be a check that all babies receive at birth and by specialists who know how to recognise a tongue-tie, no matter how “small” – the feeding consultant who did the frenulectomy said that often ties that are written off as slight actually turn out to be quite thick and deep and really do affect feeding. Anyway, fingers crossed it’s onwards and upwards for you both now! Well done on getting the help you deserve xx

      • It’s awful it’s such a postcode lottery as to what help you get. We were very lucky to be in an area where they hold weekly clinics where they do nothing but frenulectomies. It’s such an easy procedure that can produce such dramatic benefits that it’s amazing more areas don’t do similar. It’s surely also more cost-effective than treating all the feeding problems that can arise from *not* offering easy access to tongue-tie clinics!

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